How long we keep your data

The Sponsor will retain your personal data for at least 25 years after the end of the study (when the last piece of health data is collected about study participants, which will be many years after everyone stops the study medications), in line with Good Clinical Practice (GCP) and relevant legislation. Because the study is continuing after the initial treatment phase to assess the long-term effects of the treatments, your direct identifiers will be stored until at least 2037 and your other personal data may be stored for a longer period. At the end of the retention period, your personal data will either be deleted or rendered anonymous (non-identifiable).

We may need to retain your personal data for longer if it is necessary to fulfil our purposes, including any relating to legal, accounting, or reporting requirements. We may also retain personal data for further research for which a legal basis exists, but this will always be done in accordance with data protection laws.

General information about how long different types of information are retained by the University can be found in the University’s Policy on the Management of Research Data and Records.